Claudia began mom’s day with her this morning. As Claudia did mom’s physical therapy/range of motion exercises, she put on Channel 7 News. A commercial for dog food came on and the announcer was speaking about dogs and nutrition and, while he spoke, a bag of BENEFUL dog food was on the TV screen. Mom was watching and read the word, “BENEFUL.” Claudia praised her!! Later, a report about the Congress woman in Arizona came on and it showed flowers at the White House. Mom put a concerned look on her face and asked, “What?” Claudia reassured her and changed the channel. Claudia came up with the idea that we are going to leave the CLOSED CAPTIONING on the TV from now on so that mom can read the screen. Leave it to Claudia!! She thinks of everything, thank God! Claudia left for work and left mom with the tray table on her lap, an open magazine with a lot of writing on it, and the TV on Channel 7. We are going to start to use some of the EYE WITNESS reading series books for children with mom because they have pictures and coinciding words. Dad and Aunt Carol came to see mom next. Dad said mom was awake and alert. She moved her left foot once and she moved her left and right arms a bit. She tried to touch her nose with her right hand but didn’t quite make it. Each day, she gets closer to her target and lifts her arm a little higher. A woman came to see mom with a keyboard and sang songs. Aunt Carol sang along and tried to move mom’s arms in time to the music. Dad and Aunt Carol left mom awake and looking at TV – The Food Channel.
Now for the nuts and bolts again. I called the Medical Records Department of the facility this morning to request mom’s care plan (a copy of it) and the ability to view the incident report from 12/22 before Thursday’s meeting. I was told by the person in Medical Records that she would make copies for me but it would take 2-3 days to do (against the law---I must have in my hand within 24 hours of requesting). She mentioned nothing about the Incident Report. Claudia made a call to the attorney she found and he informed us that CODE SECTION 42 Code of Federal Regulation 483.10 (B) (2) states that family is allowed, in some cases copies of, and in other cases, access to medical records within 24 hours of requesting them. I called the person in Medical Records back again and requested that the copies of the Care Plan be ready before Thursday and that we review the Incident Report before then as well (incident report is an internal document—can’t have copies but CAN review it). She said not possible, so I quoted the law and the attorney’s name; she said she would have the Care Plan copied and ready on Wednesday…but no access to Incident Report. I called back to say that there is a blizzard expected Wednesday so we need it on Tuesday—she said no, I quoted law and she said OK but still wouldn’t budge on the Incident Report. I told Dad to go sign for the records (instead of me as discussed with the medical records person) and she told dad no need to sign because his daughter is coming to sign!! I caught dad by phone before he left and told him to go sign. I called her back and told her to let dad sign. Dad signed and also went to the Building Administrator as I told him to do. I texted the Building Administrator and asked for everything and cited the law. The Building Administrator got the Social Worker and met and then met with Dad. THREE AND ONE HALF HOURS AFTER THE FIRST CALL WAS MADE…He is going over all the records with us tomorrow afternoon. PHEW!!!! WHY DOES IT HAVE TO BE SO HARD????!!!!!! What do people do who don’t know this???!!! I was very calm and polite with each person I spoke to but wow what a system!!
Con, Sammy, Anthony Michael and Dad saw mom tonight. She was still awake when they got there!! Record breaker!! They were all upset at first because they couldn’t find her eyeglasses –but then they found them on the floor behind the vent. It would be so great if MOM threw them on the floor or knocked them off her face!! We don’t know though. Dad said that mom reached her nose with her right hand tonight!!! YIPPEEE!!! He said she moved both her arms a lot and moved her feet a lot too. They did her full physical therapy/range of motion exercises and talked with mom. They watched TV too. Mom fell asleep soon after they arrived. They tucked her in and prayed with her and readied her for bed and left.
Reminders: Please pray for Lenny tomorrow – surgery at 7:15 a.m. Pray all goes well and that there will be no nerve damage.
ALSO: Jean is going to wake up and be with mom tomorrow morning---He asks that you all pray for a peaceful, joyful time with mom---not like the last time he went to start her day with her.
“ For in Him we live and move and have our being.” Acts 17:28
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