Claudia began the day with mom in the usual way with her full range of motion/physical therapy exercises. Mom was “out like a light” as Claudia reported. Claudia said that she tried to get mom to wake up but couldn’t rouse her---her limbs were dead weight so Claudia played some music for mom to listen to. Carmine came and worked with mom again today---he is such a life-saver and wonderful, giving man. Our family cannot thank him enough for what he is doing for mom. His kindness makes me cry even as I write this. Dad and Aunt Sophie came to see mom next. Dad said that he did mom’s physical therapy/range of motion exercises again and tried to work with arm strengthening using the orange scrunchy tube. Dad said that mom predominantly slept today though as well. When I came to see mom later in the afternoon, she was sound asleep and in bed. The nurse told me that a red mark on mom’s tail bone was noticed but the wound nurse said it isn’t a pressure sore—thank God!! They are treating it with cream and expect it to be gone in a few days or so. The facility doctor came and told me he ordered the CAT Scan for mom to rule out a sinus infection and that, if mom shows signs of an infection, they will treat her here rather than send her to an ENT as mom’s neurologist prescribed. We will wait to see what the results show before deciding what to do for mom and how. I noticed that she was still scrunching up her eyes a lot on and off too again tonight. This is 3 nights in a row. I am wondering if some cream is accidently getting in her eyes when she is changed? Saturday night and tonight, I noticed that her eyeglasses had some sort of lotion or cream on them. Maybe the noise bothers her and she is overtired? I am going to remove her hearing aids and see if there is a difference in her behavior. Mom definitely looks like she is in pain somehow because she is moving her head side to side and wiggling her toes as she scrunches her eyes. I turned off the TV and the dimmed the lights even though it’s only 5:30 and I took out her hearing aids as well…just to see if that helps, but it doesn’t appear to. Maybe she is dreaming??? Is that possible?? Or maybe she is thinking??? Or worrying?? I just wish I knew for sure. I showed the nurses what she’s doing and they said they really don’t know what’s happening with mom and why she’s doing this…that it’s our call. The one nurse she thinks it is a burning or ichy nose problem. We’ll have to watch and see. As she slept, mom frequently moved her mitted hands up to her mouth and chin. Also, I am noticing that, although mom has the mitts on her hands, she is still wrapping her mitted hands around the trach line (the line used for suctioning her!!)!!! I told the nurse about it and asked him to come in to see, he said that the more aware mom is, the more she will want to pull the line out---a good thing, yet a bad one. I said that we need to get her off the trach and that it seems that she is on the slow track with it again. With this, the nurse put his arm around me and looking at the sign I made mom above her bed (Don’t quit 5 minutes before the miracle happens) said, “Hey Kathy, it’s only been 2 minutes!! Don’t give up now!”
Dad went back to tuck mom in tonight.
"May the God of hope fill you with all joy and peace as you trust in him, so that
you may overflow with hope by the power of the Holy Spirit." Romans 15:13
No comments:
Post a Comment