Please pray. And...if any of my friends at SJC are reading this e-mail now---I am supposed to be a "greeter" for graduation....I can't be there...greet if you feel led to...or just let SKD know where I am! Thanks!
Claudia began the day with mom this morning. She straightened mom up in the bed and got her ready for the day. Mom had a lot of breathing issues this morning. Coughing like crazy and in need of suctioning and changing of the trach tube 3 times in 45 minutes which is excessive. Mom also appeared to be laboring to breath but the vent settings all had good readings. The respiratory person said mom is breathing OK with assistance from the vent. The therapist said the labored breathing looks like hyperventilation and gave mom a breathing treatment. The vent is set on SMIV 8. Mom's chest moves a lot with the breathing. Mom was sleepy and falling asleep but fighting to stay awake because she looked like she wanted to interact but was too sleepy. When she was awake, mom was talkative. Once, when Claudia turned away from mom for a second, mom had grabbed her trach line tightly and it took Claudia a good 2 minutes to get mom to let go of it. The supervisory nurse came in to do the quarterly behavioral review (meaning to check if mom still needs the mitts). Luckily, Claudia was there because the last time they did this, they took mom's mitts off and left her unattended!!!!!! Claudia told the nurse that mom had grabbed the trach line tightly and that mom still needs the mitts, even though we wish she didn't. The supervisory nurse asked permission to count that as their 15 minute review and Claudia said yes. Mom's mitts will remain on her for another 3 months when not attended. Mom is still on the feeding tube as well. Claudia squeezed mom's knee and asked how her muscles were which is something our grandpa did and said to us as children. Claudia asked mom who says that and mom mouthed, "My father." Mom was talkative when awake. Claudia tried to draw with mom but mom mouthed, "I can't do this" and became frustrated and refused to even cooperate with Claudia doing hand over hand assistance. Claudia explained that the crayons we use are not meant to be insulting but to build her strength in her hands. Crayons take more pressure to make a mark. Claudia took out the ball that Ava bought her and bounced it and mom watched intently. Claudia gave mom the ball and mom held it palm upward and tried to throw it. When Claudia asked her if she wanted to throw it, mom said, " No, bounce it" so Claudia did that for mom over and over and they laughed. Mom was upset that Claudia was leaving her for work. Mom shut down and wouldn't talk to Claudia. Claudia said, "I love you" and mom shook her head no. Claudia asked, "Do you love me?" and mom said, "No" then Claudia kissed her good bye and mom kissed her back and said I love you too.
Anthony just called me---it is 12:05 p.m. and I was on my way to graduation (exactly where I was last year when mom had the aneurysm burst and then the stroke...). The hospital HAS A BED FOR MOM!!!!! Dad is a nervous wreck. Pray for us all....how weird it is to be back at the same hospital exactly 1 year later to the day....
Will update again tonight.
"Into Your Hands I commit my spirit" Psalm 31:5
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