A day of waiting…
At 8:30 a.m., I called North Shore to see about the bed being ready, but it wasn’t ready yet. And so we wait.
Mom is still on tube feeding and still on the vent SMIV mode (which means on the vent). Her vent settings are RATE = 8 (6 is the lowest on the SMIV mode), PIP = 14 (lowest is 8 or 6 on this vent setting). All of this is assumed to be temporary until mom gets the shunt.
Claudia began the day with mom and found her sleepy and sleeping. Any time she talked to mom or opened her eyelids, mom would just stare blankly and go back to sleep. When dad and Anthony came this morning, mom was awake but coughing a lot. She was back to sleep mostly when I arrived in the early afternoon. We aren’t really doing any of her therapies (range of motion/physical therapy, cognitive therapy…) because we want her to rest. Basically, we hold her hand, or rub her hair and talk to or pray with her. At one point, before her shower, she woke and stared at me. It’s as though she is too weak to respond much. She manages to mouth, “What” every now and then, but that’s it. She had her bi-weekly shower this afternoon. After her shower, she was more awake than she was earlier at first, but then she fell asleep again. Claudia drove out to the facility in torrential rain and picked up dad and they tucked mom in for the evening and drove home together.
Hopefully, there will be a bed for mom at North Shore tomorrow....she slowly slips further away from us with each passing day.
"But they that wait upon the LORD shall renew [their] strength; they shall mount up with wings as eagles; they shall run, and not be weary; [and] they shall walk, and not faint." Isaiah 40:31
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